Last year for National Invisible Illness week I wrote 30 things about my invisible illness. The answers have changed a bit, so I figured I’d update them for this years Invisible Illness Week. And yes, I know I’m doing this early, I’m just awesome like that.
1. The illness I live with is: Fibromyalgia and Lyme Disease
2. I was diagnosed with it in the year: November 2011
3. But I had symptoms since: April 2010
4. The biggest adjustment I’ve had to make is: Letting go of all the things I used to do and accepting that I will not have any more children or a great career
5. Most people assume: That I am just fine and that I should function like everyone else
6. The hardest part about mornings are: Getting my exhausted body out of bed. Mornings are when the pain is at it’s worst.
7. My favorite medical TV show is: Scrubs, though I wouldn’t consider it much of a medical show, it’s more comedy than anything
8. A gadget I couldn’t live without is: My Kindle, it keeps my kids entertained when I am feeling my worst. Though I could probably live without it if I needed to since I just got it.
9. The hardest part about nights are: Getting to sleep, it usually takes me an hour or so and that’s with heavy sleeping pills. If I didn’t take sleeping pills I’d never sleep.
10. Each day I take __ pills & vitamins: I’ve pared it down lately, I think it’s only 5.
11. Regarding alternative treatments I:I’m open, but very skeptical. I’ve been trying to manage my health more through diet and vitamins lately, we’ll see how it goes.
12. If I had to choose between an invisible illness or visible I would choose: Invisible. Sometimes it’s nice to be able to pretend to be normal. Nobody stares at me when I go out because they have no idea I have an illness. Sometimes I think it would be nice if it was visible so people would understand me better, but overall I’m glad it’s not.
13. Regarding working and career: It’s a pipe dream for me. I hope to work part time by next year, but I don’t think I’ll ever be able to work full time again, and I’ll definitely never have a career.
14. People would be surprised to know: I get really jealous of people who can have a career, it’s not fair (of course, as my father used to say, fair’s where you go to see the pigs).
15. The hardest thing to accept about my new reality has been: Giving up my dreams and finding new ones.
16. Something I never thought I could do with my illness that I did was: Be happy, I figured if I was in pain all the time I would have to be miserable.
17. The commercials about my illness: Haha, they’re such a joke! Take a pill for fibromyalgia and you’ll be cured and be able to do everything you want! Yea right!
18. Something I really miss doing since I was diagnosed is: Rock climbing
19. It was really hard to have to give up: Socializing. I haven’t given it up, but I’m not the life of the party anymore. I have to limit how often I have people over since it takes most of my energy.
20. A new hobby I have taken up since my diagnosis is: Blogging
21. If I could have one day of feeling normal again I would: Take my kids rock climbing
22. My illness has taught me: To be patient and sympathetic with others (at least, more than I used to)
23. Want to know a secret? One thing people say that gets under my skin is: “But I get tired too, and I don’t get to sit around like you do.”
24. But I love it when people: Let me know they care
25. My favorite motto, scripture, quote that gets me through tough times is: “The only way to get through life is to laugh your way through it. You either have to laugh or cry. I prefer to laugh, crying gives me a headache.” Marjory Hinckley
26. When someone is diagnosed I’d like to tell them: This will be one of the hardest things you will have to deal with, but you can still live a happy life.
27. Something that has surprised me about living with an illness is: Life goes on.
28. The nicest thing someone did for me when I wasn’t feeling well was: Several people have had my kids over at different times to give me a break.
29. I’m involved with Invisible Illness Week because: I want to spread awareness about invisible illness.
30. The fact that you read this list makes me feel: Surprised, it’s a long list! I feel like I should offer a prize or something.