My doctor asks me ever time I go see her how the fibro fog/ lyme brain is going. I usually give some vague answer about how it’s annoying but I get by. I don’t like anyone, not even my doctor, thinking I’ve lost my brain, especially since she can’t do anything about it.
I follow all the coping strategies suggested when dealing with the loss of brain power. I’m a hyper-organized person and it’s come in handy when dealing with my brain fog. I write everything down, I have notes all over my house to remind me to do things. I write everything down on the calender, even if it’s something routine, because if it isn’t on the calendar then I won’t remember it. I also keep things in the same place so I can find them (I still can’t find them). I also try not to multitask too much because I think that often makes the fog worse. I used to be a champion multitask-er, I’d be at work making a hotel reservation on the phone, while writing an essay for a college class, while cashing a check for a a customer, and I never blinked an eye. These days I can’t even watch tv and write a blog post!
Still, I manage to hide my crazy from everyone besides my family most of the time. Lately though, I’ve been in such a fog that other people are starting to notice, frankly they can’t help but notice because I’ve been looking like an idiot. I was sitting at my daughter’s dance studio last week talking to some friends that don’t yet know me well enough to know about all my issues. I was tired which made following the conversation even harder then it normally is. A friend asked me a question and I couldn’t wrap my mind about what she was asking, I was so confused. I gave some off the wall answer and she looked at me like I was nuts! She’s an awesome person so I know she wasn’t judging me, but I’m sure she was wondering what in the world I was talking about. It was definitely a “best of fibro fog/Lyme brain moment”, about on par with the incident where I found my keys in the freezer or when I signed a check using my maiden name (yeah, I’ve been married for 9 years, I should probably have my married name down by now). Sometimes all the coping strategies in the world fail you and you look like an idiot. What I wouldn’t give to have my brain back!