When you get diagnosed with a chronic illness there are some things your doctor will never tell you. Even your friends with chronic illness may not mention them, sometimes because they aren’t a polite topic of conversation, sometimes because you just have to find out for yourself.
Pooping can become a lot more difficult. Quilted Northern is your friend.
Seriously, pooping. Look into the squatty potty, I’ve heard good things.
Lying around all day is not actually not as fun as you think
You will have conversations with your spoonie friends about body parts you’d never thought you’d mention to another human being
Painsomnia will haunt you
You will lose respect for doctors and many other medical professionals. You might even come to hate them.
Those “relaxing” yoga poses are for gymnasts, not regular people
You will miss things you used to hate, like work and exercise
You’re going to be told you’re crazy on a regular basis
Random body parts may swell up to ginormous proportions, and you’ll just ignore it and go on with your life
You will be jealous of healthy people, and sometimes you’ll hate them
Even though you know your illness isn’t your fault, you will feel guilty about being sick
You and your heating pad will be close friends
You will have to give up everything that tastes good
You cannot push through fatigue, it will just make you sicker
Your probably going to sweat a lot, and usually for no reason so be prepared
Being sick will effect your mental capabilities. You will lose your thoughts in the middle of a sentence. You will try to shampoo your hair with your body wash at least once
Jeans are hell, you will embrace the wonder of yoga pants
Because of bad experiences, you might develop doctor anxiety
Being sick is a full time job. You will spend most of your energy on doctors appointments, yelling at your insurance company, and managing your prescriptions.
Parts of your body will hurt that you never thought possible, like your hair
Getting disability benefits is practically impossible
Sometimes you will completely fall apart, but you will find a way to put yourself back together again.
Your body is constantly surprising you with the new ways it can find to malfunction.
Life is still funny, even when you’re hurting