Sometimes it's the little things about living with chronic illness that annoy you. There's nothing like yet another person trying to sell you a magic cure, or tell you that you're not trying hard enough.

How the absurd little things annoy you when you have a chronic illness

Life with chronic illness can be stressful, weighty, and overwhelming, but sometimes it’s the absurd little things that annoy you. Life has been a stressful mess the last year and a half, so I figured it was time for some chronic illness humor. Here are a few things that annoy me the most, with sarcastic commentary…Continue reading How the absurd little things annoy you when you have a chronic illness

Heat intolerance and temperature sensitivity can be annoying and disruptive symptoms of Fibromyalgia that no one takes seriously. Yet, they can have a significant impact on your life, so why do they happen?

How heat intolerance can be an annoying and overlooked symptom of Fibromyalgia

Heat intolerance and temperature sensitivity are often overlooked side effects of Fibromyalgia. They don’t kill you except in the most extreme situations, so doctors don’t typically address them. Or if they do address them, they simply advise you to stay inside and avoid the sun. Unfortunately, it’s never that simple. Heat intolerance itself has its…Continue reading How heat intolerance can be an annoying and overlooked symptom of Fibromyalgia

Wellness culture preys on women with chronic illness who have been rejected by the sexist medical system. Wellness culture convinces women that they can cure their diseases if they just try hard enough, and that is toxic.

How wellness culture is toxic for people with chronic illness

Wellness culture is toxic for people with chronic illness and chronic pain, and many chronic illness blogs and influencers get sucked into the culture and spread it with the best of intentions. They arrive so excited to talk about their illness, but slowly over time, they realize that chronic illness is a very niche topic…Continue reading How wellness culture is toxic for people with chronic illness

Receiving a Fibromyalgia diagnosis can be overwhelming since there is a lot of controversy and there is no cure, but here's some tips on finding the right treatment for you

The ultimate guide to Fibromyalgia and how to treat it

Receiving a Fibromyalgia diagnosis can be overwhelming, but don’t worry, while there is no cure there are Fibromyalgia treatment options. I’m fairly confident that in the last ten years I’ve tried most of them! Some work better than others, and each answer is individual, but a Fibromyalgia diagnosis is not a death sentence. So here’s…Continue reading The ultimate guide to Fibromyalgia and how to treat it

In honor of Fibromyalgia/Chronic Fatigue Awareness Day here's a list of 6 influential disabled women with chronic fatigue syndrome or ME

6 influential women with disability from Chronic Fatigue Syndrome/ME

There are so many women in history who lived with disability and chronic fatigue syndrome (CFS) or myalgic encephalomyelitis (ME). Unfortunately, there is little information about them available so they can’t individually be a part of my Disabled Women in History series. However, in honor of chronic fatigue syndrome / myalgic encephalomyelitis awareness month and…Continue reading 6 influential women with disability from Chronic Fatigue Syndrome/ME

It's always hard to know how to help or support someone with chronic pain. You might feel clueless and helpless and you want to do something about it. Here's 6 tangible suggestions to help someone with chronic pain.

6 tangible ways to help someone with chronic pain

I’ve written before about supporting someone with chronic illness by believing them and validating what they’re going through. Today though, we’re talking about tangible ways that can help someone with chronic pain and make a difference in someone’s day. My love language is food. I love to bake bread and share it with people, because…Continue reading 6 tangible ways to help someone with chronic pain

Wilma Mankiller was the first female Chief of the Cherokee Nation of Oklahoma

Badass Disabled Women in History: Wilma Mankiller

Today, I have an extraordinary story of Wilma Mankiller, a badass disabled woman. She participated in the occupation of Alcatraz, was the Time woman of the year, was the first female Principal Chief of the Cherokee Nation, won the medal of freedom in 1998, and lived with polycystic kidney disease.  The first thing you notice…Continue reading Badass Disabled Women in History: Wilma Mankiller

How the opioid crisis can lead those with chronic pain to suicide

1 out of 10 suicides is due to chronic pain, and yet the link between chronic pain and suicide is often ignored. Furthermore, no one connects the opioid crisis to chronic pain suicide even though they’re all related to each other. Society demands that pain be concealed I’ve long struggled with finding the words to…Continue reading How the opioid crisis can lead those with chronic pain to suicide

The devastating impact of Covid 19 on disabled people

Covid and disabled people feel like a topic that has been touched on many times. Somehow though, it feels like the news articles miss the mark. So today I want to talk being disabled in a pandemic. In February 2020, I didn’t know I was disabled. Hard to believe, right? I knew I was in…Continue reading The devastating impact of Covid 19 on disabled people

Losing friends to chronic illness is a frequent occurrence. Sometimes it's because people are afraid, they don't know what to do, or they just don't want to deal with it.

Where did everybody go? Losing friends to chronic illness

Someone once told me that losing friends to chronic illness or disability was not a thing, and if I felt alone it was all my fault. Words failed me. Years later, I have a better response. It struck me that this is what people don’t understand about chronic illness or disability. In their lives, if you…Continue reading Where did everybody go? Losing friends to chronic illness