Dear politicians in Washington, The opioid crisis was not caused by chronic pain and yet you seek to punish people in pain anyway because we’re the convenient scapegoats. I’ve written dozens of articles about the opioid crisis previously, but it has clearly not reached you so I’m begging you to listen this time. What you…Continue reading Why politicians are wrong about the opioid crisis
Category: Mental Health
Why showering with Fibromyalgia is the worst thing ever
A few months ago I shared on twitter and Instagram that I finally purchased a shower chair, because showering with Fibromyalgia is rough. This was something I put off for years because I didn’t consider myself disabled enough and I am stubborn. Now that I have the chair I feel foolish for waiting so long,…Continue reading Why showering with Fibromyalgia is the worst thing ever
What is brain fog? Everything you need to know and more
Brain fog and fibro fog. It’s arguably the most frustrating symptom of Fibromyalgia, chronic illness, and chronic pain. It’s bad enough to lose control over your body, but it’s maddening to lose control over your mind. What is fibro fog or brain fog? When you have fibro fog or brain fog, you feel like information…Continue reading What is brain fog? Everything you need to know and more
How to benefit from decluttering when you have no energy
Decluttering is hard when you have no energy and live with chronic pain, chronic fatigue, or disability. As I’ve learned a lot more about how to keep my house relatively clean and to tamp down on the utter chaos caused by my minions, I thought I’d talk more thoroughly about dealing with clutter when you have…Continue reading How to benefit from decluttering when you have no energy
How to live hopefully when you have a chronic illness
I’m desperately hiding outside on this gorgeous fall day to avoid my precocious 10 year old who hasn’t stopped talking for 45 minutes. By haven’t stopped talking, I mean he has barely taken a single breath, and certainly hasn’t allowed me to get in a word besides “oh wow” and “that’s cool.” This is my…Continue reading How to live hopefully when you have a chronic illness
So this is what Painsomnia feels like
I go to bed at 11:00 pm, only to toss and turn like a rotisserie chicken for 2 hours. I can’t get comfortable because everything hurts. I know I need to get to sleep otherwise my pain levels will go even higher than they already are, and I won’t be able to function. I finally…Continue reading So this is what Painsomnia feels like
When you have a chronic illness you are enough
Guest post by Megan Clark Neville: Megan Clark Neville worked as a children’s librarian at a public library for three years. She published a chapter on Summer Reading Club Programs for Elementary Children through the Texas State Library in 2011. She has been chronically ill for the past sixteen years. She currently lives in the…Continue reading When you have a chronic illness you are enough
Pain awareness and being called to be brave
Sheryl over at A Chronic Voice hosts a monthly get together for people with chronic illnesses to write about certain topics. This month we’re talking about: Feeling, Grueling, Tempting, Running, and Mending. September is also pain awareness month and so I’ll be filtering my posts through the lens of chronic pain all month. Feeling I…Continue reading Pain awareness and being called to be brave
What people with chronic illness really want is to stop faking well
I often get questions from well meaning healthy people about what I want from them. I’m not great with words on the spot, so I thought I’d put a list of things I think people with chronic illness really want. 1. To not have to fake being well Many people with chronic illness put in…Continue reading What people with chronic illness really want is to stop faking well
Unlocking, Limiting, Studying, Watching, and Healing: Support for People with Chronic Illness
Sheryl over at A Chronic Voice hosts a monthly get together for people with chronic illnesses to write about certain topics. This month we’re talking about: Unlocking, Limiting, Studying, Watching, and Healing. UNLOCKING Covid- 19 lockdown seems like it’s going on forever. Even though there are no laws in place keeping me at home, I…Continue reading Unlocking, Limiting, Studying, Watching, and Healing: Support for People with Chronic Illness