How to benefit from decluttering when you have no energy

How to benefit from decluttering when you have no energy

Decluttering is hard when you have no energy and live with chronic pain, chronic fatigue, or disability. As I’ve learned a lot more about how to keep my house relatively clean and to tamp down on the utter chaos caused by my minions, I thought I’d talk more thoroughly about dealing with clutter when you have…Continue reading How to benefit from decluttering when you have no energy

how to live hopefully when you have a chronic illness

How to live hopefully when you have a chronic illness

I’m desperately hiding outside on this gorgeous fall day to avoid my precocious 10 year old who hasn’t stopped talking for 45 minutes. By haven’t stopped talking, I mean he has barely taken a single breath, and certainly hasn’t allowed me to get in a word besides “oh wow” and “that’s cool.” This is my…Continue reading How to live hopefully when you have a chronic illness

overload and over-stimulation are quite common in people with chronic pain, Fibromyalgia, and chronic fatigue syndrome

How to cope with Fibromyalgia sensory overload

The intense light seems to glare down at me as the excessive noise continues all around me. I feel myself start to become overwhelmed. All I want to do it get home so I can sit in my quiet and dark room. As I rush out of the store someone brushes my shoulder and spikes…Continue reading How to cope with Fibromyalgia sensory overload

when you have a chronic illness, you are enough

When you have a chronic illness you are enough

Guest post by Megan Clark Neville: Megan Clark Neville worked as a children’s librarian at a public library for three years. She  published a chapter on Summer Reading Club Programs for Elementary Children through the Texas State Library in 2011. She has been chronically ill for the past sixteen years. She currently lives in the…Continue reading When you have a chronic illness you are enough

7 frequent mistakes made by people with chronic illness

7 frequent mistakes made by people with chronic illness

Having a chronic illness is a learning process, there’s a lot of mistakes you make along the way. If you’re like me sometimes you even make the same mistakes over and over again even though you know better. Get a little bit of energy and use it all up cleaning the house  It’s so nice…Continue reading 7 frequent mistakes made by people with chronic illness

what it's really like to be a parent with chronic illness

What it’s really like to be a parent with chronic illness

Parenting with chronic illness is hard, and it’s not something we talk about very often. No one teaches us how to let go guilt, maintain boundaries, or how to interact with our kids while preserving our health. So here’s a few things I’ve learned along the way. 1. Let go of the guilt We all…Continue reading What it’s really like to be a parent with chronic illness

How to prioritize your health when you have a chronic illness

Having a chronic illness or living with chronic pain can quickly become overwhelming and that’s why it’s important to prioritize your health. Because of this one of the most important things to remember is that it is okay to tell people no. Here are four things to keep in mind when it comes to saying…Continue reading How to prioritize your health when you have a chronic illness

8 reasons why people with chronic pain feel misunderstood

Living with chronic pain isn’t easy and it doesn’t help that many pain suffers feel completely misunderstood.  Here are some of the things that people in pain regularly hear, and why they are incorrect. 1. I know what you deal with now because I’ve had (insert minor ailment here) this week. Having the flu or…Continue reading 8 reasons why people with chronic pain feel misunderstood

6 ways spoon theory is important in the struggle with chronic illness

One tool people use to explain life with chronic illness is called The Spoon Theory.  The Spoon Theory basically says that a person with a chronic illness only has so many spoons available to them, and the number changes from day to day. Once you use a spoon, it’s gone and there’s nothing you can…Continue reading 6 ways spoon theory is important in the struggle with chronic illness

The truth about chronic pain, depression,and suicide

The truth about chronic pain, depression, and suicide

A conversation on my Facebook page about the side effects of living with long term chronic pain reminded me that I needed to address this topic. I’ve avoided it because I don’t like getting too personal or emotional on my blog, and talking about depression and suicide gets really emotional. However, the more discussion I…Continue reading The truth about chronic pain, depression, and suicide