Having a positive outlook will not cure your chronic pain, that's toxic positivity. At best, it will help you to survive your pain, at worst it will put you into denial about your situation and keep you from getting appropriate treatment. 

How chronic pain is brushed away by toxic positivity

Toxic positivity is now the premier coping mechanism touted for dealing with chronic pain. Doctors have decided that pain is all in the attitude, and if someone is in pain, they’re not being optimistic enough. This has horrifying results for people in pain whose doctors are blaming them for their own suffering, and telling them…Continue reading How chronic pain is brushed away by toxic positivity

Disabled Women in History: Frida Kahlo and life with chronic pain

This week’s disabled woman in history features the incomparable Frida Kahlo who lived with chronic pain. From the beginning of her life to the end, Frida was a force. I enjoyed every single minute of my research on her. I felt her physical pain, her emotional sorrows, and her triumphs. Frida was someone with lots…Continue reading Disabled Women in History: Frida Kahlo and life with chronic pain

May is Fibromyalgia awareness month and 14 bloggers have come together to share their top tips for living with fibromyalgia

15 Top recommendations for living with fibromyalgia by those who know

Living with Fibromyalgia is a delicate dance, which is why May’s Fibromyalgia Awareness Month is so important. The bloggers at the Fibro Blogger Directory got together to provide the ultimate post for Fibromyalgia recommendations. Each blogger has a link with the rest of the blog post, so definitely head over to other blogs to read…Continue reading 15 Top recommendations for living with fibromyalgia by those who know

It's always hard to know how to help or support someone with chronic pain. You might feel clueless and helpless and you want to do something about it. Here's 6 tangible suggestions to help someone with chronic pain.

6 tangible ways to help someone with chronic pain

I’ve written before about supporting someone with chronic illness by believing them and validating what they’re going through. Today though, we’re talking about tangible ways that can help someone with chronic pain and make a difference in someone’s day. My love language is food. I love to bake bread and share it with people, because…Continue reading 6 tangible ways to help someone with chronic pain

Rosemary Kennedy was Rose and Joe Kennedy's oldest daughter. Because of oxygen deprivation when she was born she lived with disability. Her parents, not wanting anyone to find out the Kennedy's had "bad blood" allowed a lobotomy to be performed. This lead Rosemary to be profoundly disabled.

Disabled Women in History: Rosemary Kennedy and the Lobotomy

Today’s story features a Kennedy you may not be familiar with. Rosemary Kennedy was disabled and was President (JFK) Kennedy’s younger sister. This is a hard story to get through. I was reading and taking notes in bed next to my spouse and I kept scoffing, yelling at the book, and writing notes like “THIS…Continue reading Disabled Women in History: Rosemary Kennedy and the Lobotomy

How the opioid crisis can lead those with chronic pain to suicide

1 out of 10 suicides is due to chronic pain, and yet the link between chronic pain and suicide is often ignored. Furthermore, no one connects the opioid crisis to chronic pain suicide even though they’re all related to each other. Society demands that pain be concealed I’ve long struggled with finding the words to…Continue reading How the opioid crisis can lead those with chronic pain to suicide

There are many parts of coping with chronic illness that people just don't tell you about. Maybe because they're embarrassed, or maybe because they think they're all alone.

What no one tells you about coping with chronic illness

When you get diagnosed with a chronic illness there are some things your doctor will never tell you. Coping with a chronic illness is a complicated topic that even your friends with chronic illness may not approach. Sometimes because it’s not a “polite” topic of conversation, sometimes people think they’re the only one experiencing something,…Continue reading What no one tells you about coping with chronic illness

The devastating impact of Covid 19 on disabled people

Covid and disabled people feel like a topic that has been touched on many times. Somehow though, it feels like the news articles miss the mark. So today I want to talk being disabled in a pandemic. In February 2020, I didn’t know I was disabled. Hard to believe, right? I knew I was in…Continue reading The devastating impact of Covid 19 on disabled people

Losing friends to chronic illness is a frequent occurrence. Sometimes it's because people are afraid, they don't know what to do, or they just don't want to deal with it.

Where did everybody go? Losing friends to chronic illness

Someone once told me that losing friends to chronic illness or disability was not a thing, and if I felt alone it was all my fault. Words failed me. Years later, I have a better response. It struck me that this is what people don’t understand about chronic illness or disability. In their lives, if you…Continue reading Where did everybody go? Losing friends to chronic illness

Why showering with Fibromyalgia is the worst thing ever

A few months ago I shared on twitter and Instagram that I finally purchased a shower chair, because showering with Fibromyalgia is rough. This was something I put off for years because I didn’t consider myself disabled enough and I am stubborn. Now that I have the chair I feel foolish for waiting so long,…Continue reading Why showering with Fibromyalgia is the worst thing ever