30 things about my invisible illness

1. The illness I live with is: Lyme disease and Fibromyalgia

2. I was diagnosed with it in the year: November 2011

3. But I had symptoms since: April 2010

4. The biggest adjustment I’ve had to make is: Scaling back my activities because of my decreased energy levels. I have to plan my schedule carefully to make sure I don’t overdue it.

5. Most people assume: That I am just fine, because I look fine.

6. The hardest part about mornings are: I wake up feeling like an old women, my joints are all swollen and painful. I usually wake up just as tired as I was when I went to bed, which makes it hard to get up.

7. My favorite medical TV show is: I don’t like medical tv shoes, on tv people always get the treatment they need, and the doctors don’t treat them like crap.

8. A gadget I couldn’t live without is: My laptop, even though it isn’t exactly a gadget. 

9. The hardest part about nights are: Getting to sleep. it takes forever.

10. Each day I take __ pills & vitamins. 6 I think

11. Regarding alternative treatments I: I am generally a skeptic about alternative medicine, though desperation has led me to try a few things. In general they haven”t worked better or worse then mainstream medicine.

12. If I had to choose between an invisible illness or visible I would choose: Invisible, it’s nice to be able to hide my illness sometimes.

13. Regarding working and career: HaHa, yeah right.

14. People would be surprised to know: That on my bad days, I hate healthy people. Yep, I’m a horrible person. 

15. The hardest thing to accept about my new reality has been: Giving up my old dreams and goals

16. Something I never thought I could do with my illness that I did was: Go to Paris and walk miles and miles, and survive!

17. The commercials about my illness: There are no commercials for Lyme disease. The fibro commercials make me roll my eyes, they make it sound like taking a pill will make everything go away. 

18. Something I really miss doing since I was diagnosed is: Weight lifting

19. It was really hard to have to give up: Running around and playing with my kids. We now do more sedentary activities. 

20. A new hobby I have taken up since my diagnosis is: Blogging, if that counts as a hobby!

21. If I could have one day of feeling normal again I would: Play with my kids 

22. My illness has taught me: To take things one day at a time

23. Want to know a secret? One thing people say that gets under my skin is: “But I am tired too and I still have to do everything.”

24. But I love it when people: Let me know they care and are thinking of me.

25. My favorite motto, scripture, quote that gets me through tough times is: “The only way to get through life is to laugh your way through it. You either have to laugh or cry. I prefer to laugh, crying gives me a headache.” Marjory Hinckley

26. When someone is diagnosed I’d like to tell them: I haven’t met anyone newly diagnosed yet

27. Something that has surprised me about living with an illness is: How you can still  live a good life. 

28. The nicest thing someone did for me when I wasn’t feeling well was: Two friends came over and cleaned my kitchen for me. I was at the worst point of my illness and my kitchen was disgusting and I hate having a dirty kitchen.  That’s off the top of my head, there are a lot of other nice things people have done for me, I’m lucky to have great family and friends.

29. I’m involved with Invisible Illness Week because: Because I want people to be aware of these illnesses so they don’t  judge others. 

30. The fact that you read this list makes me feel: Happy and surprised that you made it all the way to 30!

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