I was officially diagnosed with chronic fatigue syndrome (CFS) about eight months ago, though I just realized I don’t think I have every made a reference to it on my blog. It’s at the back of my list of health issues right now, so for the most part I don’t think about it or do research on it. However when I was initially diagnosed I did do some research and was interested to learn the the virus XMRV was thought to be a possible cause for CFS. Today I ran across an article found here about how the XMRV theory has been disproved.*
Unfortunately this means another theory has been disproved with no viable explanation to replace it, how frustrating for those with CFS. I wonder what it would be like to have a normal disease, one that has a known cause and a known treatment? With Lyme disease I do know the cause, but the treatment is still so much in the air, much like CFS and Fibromyalgia. It’s up to the individual doctor to set a treatment plan, which is really frustrating when you can’t find a decent doctor. We (the patients) are destined to spend our lives going from doctor to doctor seeking correct treatment. Sometimes I feel like wanderer in the desert, stumbling from one source of water to another, always searching for what I need to live.
* There appears to be some disagreement about the type of trials run in this study, so we’ll see what the future brings.