Today I stumbled across a the fibromyalgia article found here. I have to admit, I gagged a little bit when I read it. I think this embodies all the problems with fibromyalgia in one lousy article. These are the suggestions that us fibromites hear over and over again:
Suggestion 1- Get more sleep.
It’s not that easy folks, people with fibromyalgia have big problems getting to sleep and staying asleep. Add to that horrific pain, and it makes makes for a lot of sleepless nights.
Suggestion 2- Exercise
If I had a dollar for every time I’ve been told exercising would fix my problems. Here’s the problem though, Saturday was a beautiful day so I spent 20 minutes weeding my flower beds which were in dire need of some attention. Here it is Monday and I am still in so much pain I can hardly walk, all from spending 20 minutes pulling weeds. Imagine what would happen if I tried to run or lift weights.
Suggestion 3- Make adjustments at work
I don’t have much criticism here since I can’t currently hold down a job.
Suggestion 4- Eat healthy food
Ok, I’ll give them that one, it is incredibly important to eat healthy, but there is no diet cure for fibro.
Suggestion 5- Find ways to control pain by asking a doctor
If only it were that easy. Many doctors are reluctant to hand out pain pills because they are afraid of getting in trouble. Especially doctors who treat many chronic pain patients, they have to worry about being investigated for handing out too many narcotics. Also, many patients who ask for pain meds are labeled drug seekers, and then it’s impossible to get help after that.
Suggestion 5- Get support from your friends and family
Of course support from friends and family is important, but most people don’t want to be friends with someone who is chronically ill. Also many people are in situations where their family and friends think they are faking, since fibro is not a easily identified disease with a blood test.
I guess my point with all this is that life is not as easy as these articles try to make it, and when people write simplistic articles like this one it only hurts fibromyaglia patients. I’d appreciate an article about real concrete ways to live a better life with chronic illness.