Angry Lyme Disease Post- part 2

Day 5 of the Wego National Health Blog post month is: Health Activist Soapbox.

Well, I have a lot of soapboxes. You can read my original Lyme soapbox here and you can read my pain medication soapbox here.  My angry Lyme disease post has been far and away my most popular post, which I would never have thought. I don’t know if there are just a lot of other lost lymies out there or if people are just interested in Lyme or what, but here’s another angry Lyme post on a slightly different topic.

I often wonder what it would be like to have a normal disease, an easily found in blood test disease. If my disease had been easily found early on I wouldn’t have gone 1 1/2 years without treatment and not knowing what was wrong with me, and I would not have developed fibromyalgia. Doctors still constantly deny that there is Lyme disease in Texas and this just blows my mind. I recently read a study done Texas A&M that collected ticks from all over Texas and tested them for Lyme. As much as HALF of the ticks they tested had Lyme disease, which is very scary. It’s ironic because I think I got bit by a tick and got Lyme when I was attending Texas A&M. It was during an ecology class where we spent lots of time tramping around in the woods.

Yet still doctors still deny there is Lyme in Texas.

 I have tested positive for Lyme disease FOUR times through Lab Corp by CDC’s strict standards. That’s not even through IGENEX which is a Lyme specialty lab that usually has a much higher rate of positive tests, due to their less stringent guidelines.

Yet there is still no Lyme disease in Texas.

I have all the classic signs of Lyme and still there is no Lyme disease in Texas.

A few years ago there was a movement by a state senator to provide Texas doctors who treat Lyme patients with more protection. He failed due to the power of the medical lobbyists (read:  insurance companies).  This senator contracted Lyme in Texas and went to his doctor expecting treatment. His doctor told the senator he couldn’t treat him alone or he would lose his license. So the doctor lined up 17 other doctors to prescribe antibiotics to the senator. Most of us do not have access to this kind of medical care, we just don’t have the political power to persuade a doctor to do this kind of thing.

Oh, and there still isn’t Lyme disease in Texas.

It’s just mind blowing that so much of the medical community is in complete denial. On the east coast there has been some improvement in protection for doctors who treat Lyme since Lyme is much more common there and they can’t pretend it doesn’t exist like they do in Texas. I am just so lucky to have Lyme in Texas where no one knows how to treat it.

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3 thoughts on “Angry Lyme Disease Post- part 2

    1. Welcome! It's a long learning process to figure out Lyme and all it's complexities. I was diagnosed not quite a year ago and I'm still learning, but if you have any questions, feel free to ask!

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