I participated in Texas’s first Lyme disease fundraiser/walk this past Saturday. I want to say a big thank you to everyone who donated, it is very much appreciated! We have so much more to learn about Lyme disease, especially in the South where no one thinks they can get it (which is very much not true).
I didn’t get to spend as much time there mingling with others as I would have liked to, but it was so nice to be surrounded by people who knew exactly what I was going through. There were quite a few people there in wheelchairs so I was reminded that as bad as things have been, I’m lucky that I’m still able to walk. So many families were sharing how devastating this disease has been and how difficult it has been to get treatment. Many families are forced to travel across the county to get the treatment they need, especially if the patient is a child because there are no Lyme specialists for children in Texas. There is actually only one practicing Lyme specialist in the entire state, and he only came back in business this past year due to the loosening of state laws on how Lyme can be treated. My doctor is an internist, not a Lyme specialist, but I’m lucky that she’s willing to treat Lyme and learn about the process as she goes. I was reminded on Saturday that many people are not so lucky,
Our whole family walked in the 1.5 k, although technically my son was huddled in the stroller. It was a beautiful day, but way too cold for us wimpy Texans, so we walked really fast! The above picture is of me and my daughter after the walk, she was a trooper. She’s wearing pink cowboy boots because we went to the Houston Livestock show and Rodeo right after the walk.
It was a really great experience and I hope that they do it again next year so I can go again and hopefully be feeling well enough to get more involved. Now someone just needs to organize a fibromyalgia/CFS walk!
*I’ve mentioned before the research that Texas A&M (GO AGGIES) has been doing on ticks and Lyme in Texas. I finally found the link to their webpage to here it is if you want to learn about it.