6 suggestions people with fibromyalgia are tired of hearing

6 suggestions people with Fibromyalgia are tired of hearing

Today I stumbled across a the Fibromyalgia article found here. I have to admit, I gagged a little bit when I read it. I think this embodies all the problems with Fibromyalgia in one lousy article. These are the suggestions that sick people hear over and over again:

Suggestion 1- Get more sleep.

Everyone with Fibromyalgia wants more sleep. Fibro patients go to sleep tired and wake up tired. They have have difficulty both falling and staying asleep. Add to that painsomnia and it makes makes for a lot of sleepless nights. If people with Fibro could get more sleep, they would. This suggestion is overly simplistic.

Suggestion 2- Exercise

If I had a dollar for every time I’ve been told exercising would fix my problems. Here’s the issue though, Saturday was a beautiful day so I spent 20 minutes weeding my flower beds which were in dire need of some attention. Here it is Monday and I am still in so much pain I can hardly walk, all from spending 20 minutes pulling weeds. Imagine what would happen if I tried to run or lift weights.

Exercise results for people in pain are mixed. Overall exercise is generally good, but it has to be tailored to the person and their body. This involves the expertise of a physical therapist, something that is not available to many people with Fibro.

Suggestion 3- Make adjustments at work

This is a great idea, unfortunately society does not cater to the chronically ill. With the advent of virtual employment there are more options than there used to be, but it’s still difficult to find a salaried job as a virtual employee. Many of the chronically ill are already employed when they become sick and they are unable to get their employers to adapt to their disabilities. Unfortunately for them if their employer fails to adapt their employment is lost and there is no recourse.

Suggestion 4- Eat healthy food

Diet is a tricky subject for people with Fibromyalgia. Many of us have found that changing out diet in certain ways makes us feel better, but many of us have found it doesn’t change anything at all. The problem is that these solutions rarely fix everything for everyone, but doctors love to use them as a bludgeon to convince patients their pain is their fault.

Suggestion 5- Find ways to control pain by asking a  doctor

If only it were that easy. Many doctors are reluctant to hand out pain pills because they are afraid of getting in trouble. Especially doctors who treat many chronic pain patients because they have to worry about being investigated for handing out too many narcotics.  Also, many patients who ask for pain medicine are labeled drug seekers, and then it’s impossible to get help.

Additionally, the sexism in the medical system denies women treatment for pain or even acknowledgement of it. Women are:

– More likely to be given sedatives for their pain, while men are more likely to be given pain medication.
– Less likely than men to be admitted to intensive care units and to get certain procedures, once they arrive there; they are also more likely to die in the ICU.
–  Going to have to wait longer then men before they get any pain medicine in the ER—65 minutes on average, compared with 49 for men.

And the depressing statistics go on and on. There is no guarantee that seeing a doctor, or even dozens of doctors will produce any results.

Suggestion 6- Get support from your friends and family

Of course support from friends and family is important, but most people don’t want to be friends with someone who is chronically ill. Also many people are in situations where their family and friends think they are faking because Fibro is not a easily identified disease.

Life is not as easy as these articles try to make it, and when people write simplistic articles like this one it only hurts Fibromyalgia patients. I’d appreciate an article about real concrete ways to live a better life with chronic illness.

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8 thoughts on “6 suggestions people with Fibromyalgia are tired of hearing

  1. So true! These are often so overly simplified. And sadly, delivered in a way that sounds like the writer thinks we just don’t understand how simple it is to cure ourselves.

  2. I am loving my new doctor! While a G.P., her specialties are Women’s Health and Chronic Disease Management. What could be better for a woman with fibro? Her plan is to work with me on ways to reduce the amount of medication I am taking. Because I have SAD and osteoarthritis, we are waiting for warmer weather and more sunshine, though.

  3. Thanks for this article. Trying to explain FMS to people who’ve never experienced anything like it is nearly impossible. It’s exhausting just trying, so I usually don’t even try.

    I have found 3 things that work very well for me.
    1) Malic Acid/Magnesum supplements such as: https://www.luckyvitamin.com/p-19209-trask-nutrition-fibro-malic-natural-fibromyalgia-relief-180-capsules

    2) Excluding gluten and all nightshade vegetables from my diet. Unfortunately, those are some of my very favorite foods, but the difference I feel in my levels of pain is worth the sacrifice.

    3) teas made from herbs: Bayleaf tea (2-3 bayleaves boiled in 2 cups of water) with a dash of cinnamon for nice flavor is a great natural pain reliever that doesn’t upset my stomach; turmeric and ginger tea does a lot to help decrease the inflammation.

    I understand that avoiding caffeine and sugar are also very helpful, but a girl does have her limits. 😉

    I am not pain free, however, on a daily basis, my pain levels have gone from 8-10 down to 2-4, and I am very thankful that I am able to continue working and enjoying my life for the most part. I do still tire much more easily than those without FMS and I continue to look for natural ways to manage this disease. I hope that this info will help someone else to enjoy life just a little bit more as well.

    1. I’m so glad you’ve found some things that work for you. I love herbal tea, I especially like it at night to help me relax.

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