Decluttering is hard when you have no energy and live with chronic pain, chronic fatigue, or disability. As I’ve learned a lot more about how to keep my house relatively clean and to tamp down on the utter chaos caused by my minions, I thought I’d talk more thoroughly about dealing with clutter when you have…Continue reading How to benefit from decluttering when you have no energy
Category: Living with chronic illness
How to find pain free clothing when you have Fibromyalgia
This post includes affiliate links, please see my disclosure policy for details. A few weeks ago I addressed Fibromyalgia sensory overload and the problems that it can create. One of those problems is a high touch sensitivity. Touch sensitivity (called allodynia) makes anything touching the skin painful. This is why scratchy sheets and the wrong…Continue reading How to find pain free clothing when you have Fibromyalgia
How to live hopefully when you have a chronic illness
I’m desperately hiding outside on this gorgeous fall day to avoid my precocious 10 year old who hasn’t stopped talking for 45 minutes. By haven’t stopped talking, I mean he has barely taken a single breath, and certainly hasn’t allowed me to get in a word besides “oh wow” and “that’s cool.” This is my…Continue reading How to live hopefully when you have a chronic illness
So this is what Painsomnia feels like
I go to bed at 11:00 pm, only to toss and turn like a rotisserie chicken for 2 hours. I can’t get comfortable because everything hurts. I know I need to get to sleep otherwise my pain levels will go even higher than they already are, and I won’t be able to function. I finally…Continue reading So this is what Painsomnia feels like
How to cope with Fibromyalgia sensory overload
The intense light seems to glare down at me as the excessive noise continues all around me. I feel myself start to become overwhelmed. All I want to do it get home so I can sit in my quiet and dark room. As I rush out of the store someone brushes my shoulder and spikes…Continue reading How to cope with Fibromyalgia sensory overload
When you have a chronic illness you are enough
Guest post by Megan Clark Neville: Megan Clark Neville worked as a children’s librarian at a public library for three years. She published a chapter on Summer Reading Club Programs for Elementary Children through the Texas State Library in 2011. She has been chronically ill for the past sixteen years. She currently lives in the…Continue reading When you have a chronic illness you are enough
Pain awareness and being called to be brave
Sheryl over at A Chronic Voice hosts a monthly get together for people with chronic illnesses to write about certain topics. This month we’re talking about: Feeling, Grueling, Tempting, Running, and Mending. September is also pain awareness month and so I’ll be filtering my posts through the lens of chronic pain all month. Feeling I…Continue reading Pain awareness and being called to be brave
What people with chronic illness really want is to stop faking well
I often get questions from well meaning healthy people about what I want from them. I’m not great with words on the spot, so I thought I’d put a list of things I think people with chronic illness really want. 1. To not have to fake being well Many people with chronic illness put in…Continue reading What people with chronic illness really want is to stop faking well
Unlocking, Limiting, Studying, Watching, and Healing: Support for People with Chronic Illness
Sheryl over at A Chronic Voice hosts a monthly get together for people with chronic illnesses to write about certain topics. This month we’re talking about: Unlocking, Limiting, Studying, Watching, and Healing. UNLOCKING Covid- 19 lockdown seems like it’s going on forever. Even though there are no laws in place keeping me at home, I…Continue reading Unlocking, Limiting, Studying, Watching, and Healing: Support for People with Chronic Illness
7 frequent mistakes made by people with chronic illness
Having a chronic illness is a learning process, there’s a lot of mistakes you make along the way. If you’re like me sometimes you even make the same mistakes over and over again even though you know better. Get a little bit of energy and use it all up cleaning the house It’s so nice…Continue reading 7 frequent mistakes made by people with chronic illness