when you have a chronic illness, quarantine life is nothing new

When you have a chronic illness, quarantine life is nothing new

Some of the world is starting to emerge from quarantine, while others are head back into it because of reopening too soon (thanks Texas). But while healthy people get to go back to their regularly scheduled lives, people with chronic illness or disabilities are being left behind. It’s still too dangerous for anyone with health…Continue reading When you have a chronic illness, quarantine life is nothing new

How to recognize strength and bravery in your suffering. Learning how to be proud of how chronic illness has changed you

How to recognize the strength and bravery in your suffering

I used to hate being alone. I was always busy, every minute of every day. I didn’t have the time or the desire to be by myself. Being alone only gave me time to think, and I didn’t want that. Then one day chronic illness hit me like a mack truck, and I was forced…Continue reading How to recognize the strength and bravery in your suffering

How to prioritize your health when you have a chronic illness

Having a chronic illness or living with chronic pain can quickly become overwhelming and that’s why it’s important to prioritize your health. Because of this one of the most important things to remember is that it is okay to tell people no. Here are four things to keep in mind when it comes to saying…Continue reading How to prioritize your health when you have a chronic illness

The end of wandering in the darkness, alone (How we can work to create a better world)

In my dreams there is a different world. It’s a beautiful world full of a exquisite colors and patterns. It is filled with delight and wonder. In this world curiosity and deep thought are encouraged and not derided or mocked. In this world people try to understand and empathize with each other. In this world…Continue reading The end of wandering in the darkness, alone (How we can work to create a better world)

is kratom a revolutionary treatment for chronic pain

Is kratom a revolutionary treatment for chronic pain?

As I’ve mentioned previously, I was able to receive treatment for my debilitating chronic pain for years, but lost access to that treatment a few years ago. Once that loss became permanent I decided I need to look into other options. Medical marijuana is not legal in my state, so I had limited choices.  I…Continue reading Is kratom a revolutionary treatment for chronic pain?

how to make decisions about easing up Covid-19 lockdown

How to make decisions about easing up Covid-19 lockdown

Covid-19 lockdown means that at this particular moment I’m watching (and listening to the narration) of  my son building a train track. Normally he would never demean himself far enough to play with a toy, but quarantine is no joke and he is bored out of his mind. School is almost out and online learning…Continue reading How to make decisions about easing up Covid-19 lockdown

how to be brave in the face of chronic illness

How to be brave in the face of chronic illness

Let’s talk about bravery. The word conjures of an image of heroes, fictional or real.  Currently we’re having conversations about the bravery of the nurses and doctors that are saving lives during this pandemic. These conversations are important right now and I don’t want to take away from them , but today I want to…Continue reading How to be brave in the face of chronic illness

Surviving Covid-19 when you have a chronic illness

Surviving Covid-19 when you have a chronic illness

The most prolonged, stressful experience I’ve ever had in my life was living through Hurricane Harvey. Because the waters kept rising at night, I didn’t sleep for 5 days straight. I’d be up all night watching to torrential rain come down, and watching the water line come up. I put up everything of value on…Continue reading Surviving Covid-19 when you have a chronic illness

being immuno-compromised in a Covid-19 world is terrifying

Being immuno-compromised in a Covid-19 world is terrifying

Being immuno-compromised in a Covid-19 world is terrifying. It’s been a while since I last blogged. At some point I figured that I had run out of things to say and considered giving up blogging forever. Yet for some reason I paid my hosting fees for another year, just to give myself the option of…Continue reading Being immuno-compromised in a Covid-19 world is terrifying

finding comfort when you're having a bad pain day

Finding comfort when you’re having a bad pain day

Bad pain days  take everything out of you. They suck your body and soul dry. You feel empty and destroyed. You try to distract yourself so you can have a better attitude, but the pain is so overwhelming you can’t get past it. You wish you could go to sleep and then magically wake up…Continue reading Finding comfort when you’re having a bad pain day