The devastating impact of Covid 19 on disabled people

Covid and disabled people feel like a topic that has been touched on many times. Somehow though, it feels like the news articles miss the mark. So today I want to talk being disabled in a pandemic. In February 2020, I didn’t know I was disabled. Hard to believe, right? I knew I was in…Continue reading The devastating impact of Covid 19 on disabled people

How to have a successful Covid-19 Christmas with chronic illness

Holiday season is upon us. If you’re American you’ve just finished celebrating Thanksgiving, hopefully in a safe fashion. Now the holidays of Christmas, Hanukah, Kwanza etc. are upon us and we’re all wondering how to thread the needle of safety and seeing family. It’s been a long year and everyone is desperate to spend some…Continue reading How to have a successful Covid-19 Christmas with chronic illness

Pain awareness and being called to be brave

Sheryl over at A Chronic Voice hosts a monthly get together for people with chronic illnesses to write about certain topics. This month we’re talking about: Feeling, Grueling, Tempting, Running, and Mending. September is also pain awareness month and so I’ll be filtering my posts through the lens of chronic pain all month. Feeling I…Continue reading Pain awareness and being called to be brave

when you have a chronic illness, quarantine life is nothing new

When you have a chronic illness, quarantine life is nothing new

Some of the world is starting to emerge from quarantine, while others are head back into it because of reopening too soon (thanks Texas). But while healthy people get to go back to their regularly scheduled lives, people with chronic illness or disabilities are being left behind. It’s still too dangerous for anyone with health…Continue reading When you have a chronic illness, quarantine life is nothing new

how to make decisions about easing up Covid-19 lockdown

How to make decisions about easing up Covid-19 lockdown

Covid-19 lockdown means that at this particular moment I’m watching (and listening to the narration) of  my son building a train track. Normally he would never demean himself far enough to play with a toy, but quarantine is no joke and he is bored out of his mind. School is almost out and online learning…Continue reading How to make decisions about easing up Covid-19 lockdown

Surviving Covid-19 when you have a chronic illness

Surviving Covid-19 when you have a chronic illness

The most prolonged, stressful experience I’ve ever had in my life was living through Hurricane Harvey. Because the waters kept rising at night, I didn’t sleep for 5 days straight. I’d be up all night watching to torrential rain come down, and watching the water line come up. I put up everything of value on…Continue reading Surviving Covid-19 when you have a chronic illness