Invisible Illness feels like clinging to the edge of a cliff with all your might as someone tries to force you off by stomping on your hand repeatedly.

Invisible illness: when people can’t see your pain

This week is Invisible Illness week, and so I’ve been thinking about what it really means to have an invisible illness. While everyone’s experience is different, this is what invisible illness is to me:

 

Invisible illness is being pressured into doing things you’re too sick to do

Invisible illness is being told you just need to try harder

Invisible illness is being exhausted to the bone, and yet you are expected to carry on

Invisible illness is when people think you’re just a failure

Invisible illness means cancelling plans when you really want to follow through

invisible illness means cancelling plans when you really want to follow through

Invisible illness is giving everything you have to meet your obligations, and no one cares

Invisible illness is no one seeing how hard you try

Invisible illness is being told you’re just not good enough

Invisible illness is people second guessing you every day

Invisible illness is people judging and labeling you

Invisible illness is when no one listens

Invisible illness is having to fake being well

Invisible illness is always falling short

invisible illness is being pressured to do things you're too sick to do

 

Invisible illness is always having to prove you’re sick

Invisible illness is never being respected

Invisible illness is loneliness

Invisible illness is having to carry other’s expectations

Invisible illness is when no one hears you

Invisible illness can break you

Invisible illness is pain

Finally, invisible illness feels like clinging to the edge of the cliff with all your might as someone tries to force you off by stomping on your hand repeatedly.

 

Every day you feel like you’re doing the best you can, and it’s never enough. There’s always someone you’ve let down, or someone who is angry you aren’t trying harder. Which is why you have to let go of other people’s expectations. When you’re sick there is no way you can make everyone happy, so you have to learn to make yourself happy.  Just remember that you’re stronger than you think. You never know how strong you are until something or someone pushes you off that cliff, and you find yourself hanging on as tight as you can with your fingertips.

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