When you get diagnosed with a chronic illness there are some things your doctor will never tell you. Coping with a chronic illness is a complicated topic that even your friends with chronic illness may not approach. Sometimes because it’s not a “polite” topic of conversation, sometimes people think they’re the only one experiencing something,…Continue reading What no one tells you about coping with chronic illness
The devastating impact of Covid 19 on disabled people
Covid and disabled people feel like a topic that has been touched on many times. Somehow though, it feels like the news articles miss the mark. So today I want to talk being disabled in a pandemic. In February 2020, I didn’t know I was disabled. Hard to believe, right? I knew I was in…Continue reading The devastating impact of Covid 19 on disabled people
Where did everybody go? Losing friends to chronic illness
Someone once told me that losing friends to chronic illness or disability was not a thing, and if I felt alone it was all my fault. Words failed me. Years later, I have a better response. It struck me that this is what people don’t understand about chronic illness or disability. In their lives, if you…Continue reading Where did everybody go? Losing friends to chronic illness
What are the best medications for fibromyalgia?
Disclaimer: This content should not be substituted for medical advice. Please seek the advice of your doctor if you have any questions or concerns. The content in this posts links to many NIH studies, but I am no expert on these topics. This blog is intended for informational purposes only. It is not a substitute…Continue reading What are the best medications for fibromyalgia?
Why politicians are wrong about the opioid crisis
Dear politicians in Washington, The opioid crisis was not caused by chronic pain and yet you seek to punish people in pain anyway because we’re the convenient scapegoats. I’ve written dozens of articles about the opioid crisis previously, but it has clearly not reached you so I’m begging you to listen this time. What you…Continue reading Why politicians are wrong about the opioid crisis
How to complete household tasks with chronic illness
I’ve officially lived with chronic illness, chronic pain, and disability for 10 years. In that time I have gone from having an infant and a toddler to having a teen and a tween. When it comes to household tasks with chronic illness and chronic pain, I have seen it all. Most if not all of…Continue reading How to complete household tasks with chronic illness
Everything you need to know about a spinal cord stimulator
Because I frequently write about chronic pain and the opioid epidemic, people often ask me about the spinal cord stimulator. Many doctors are taking patients off opioids and suggesting that the only other option is a surgery to implant a stimulator. Pain patients abandoned by doctors feel like this is their only option, but they’re…Continue reading Everything you need to know about a spinal cord stimulator
Why showering with Fibromyalgia is the worst thing ever
A few months ago I shared on twitter and Instagram that I finally purchased a shower chair, because showering with Fibromyalgia is rough. This was something I put off for years because I didn’t consider myself disabled enough and I am stubborn. Now that I have the chair I feel foolish for waiting so long,…Continue reading Why showering with Fibromyalgia is the worst thing ever
Everything you need to know about chronic pain in 2020
2020 has definitely been a strange year. I’ve spent so much time at home or wearing a mask in public that I’m the healthiest I’ve ever been. Despite that, my chronic pain has continued to be out of control, and I don’t think I’m the only one. Of my top posts in 2020, almost all…Continue reading Everything you need to know about chronic pain in 2020
How to have a successful Covid-19 Christmas with chronic illness
Holiday season is upon us. If you’re American you’ve just finished celebrating Thanksgiving, hopefully in a safe fashion. Now the holidays of Christmas, Hanukah, Kwanza etc. are upon us and we’re all wondering how to thread the needle of safety and seeing family. It’s been a long year and everyone is desperate to spend some…Continue reading How to have a successful Covid-19 Christmas with chronic illness